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final Transaction NFDI4Health Resource 2.16.840.1.113883.3.1937.777.64.4.6

Data Set Module Record Linkage (V3.3) 2.16.840.1.113883.3.1937.777.64.1.5

Name Id
final NFDI4Health Resource (v3.3) 2.16.840.1.113883.3.1937.777.64.4.6
Effective date Expiration date
2023‑12‑07
Description
Name Details [‑]
folder deprecated RecordLinkage Conditional
nfdhtfcov19-dataelement-124
Id nfdhtfcov19-dataelement-124 (2023‑11‑30 21:04:41) v3.3
Cardinality Conditional

Card/Conf Condition
1 … 1 Mandatory 1..1, if Design.dataSharingPlan.recordLinkage == "Yes"
0 … 0 Not permitted 0..0, if Design.dataSharingPlan.recordLinkage == "No"

Description

Information about record linkage for the [RESOURCE]

Properties

RecordLinkage

RecordLinkage

Rationale

Description: Group of items providing information on record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 1..1, if Design.dataSharingPlan.recordLinkage == 'Yes'; otherwise 0.. 0

Comment

Cardinality: 1..1, if Design.dataSharingPlan.recordLinkage == 'True'; otherwise 0.. 0

target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated legalBasis 0 … 1
nfdhtfcov19-dataelement-123
Id nfdhtfcov19-dataelement-123 (2023‑11‑30 21:03:38) v3.3
Cardinality 0 … 1
Description

Legal regulation/permission for record linkage

Properties

RecordLinkage.legalBasis

RecordLinkage.legalBasis

Rationale

Description: Indication whether there are specific regulations/permissions for record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Additional information: Whether any specific legal regulations/permissions exist (e.g. for social data, for cancer registry data, hospital data, etc.).

Comment

Cardinality: 0..1

Value Domain Boolean
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated legalBasisDetails Conditional
nfdhtfcov19-dataelement-125
Id nfdhtfcov19-dataelement-125 (2023‑11‑30 21:11:21) v3.3
Cardinality Conditional

Card/Conf Condition
1 … 1 Mandatory 1..1, if RecordLinkage.legalBasis == "Yes"
0 … 0 Not permitted 0..0, if RecordLinkage.legalBasis == "No"

Description

Specific legal basis allowing record linkage

Properties

RecordLinkage.legalBasisDetails

RecordLinkage.legalBasisDetails

Rationale

Description: Information specifying which specific legal basis allows for record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Additional information: If existing, any specific legal regulations/permissions (e.g. for social data, for cancer registry data, hospital data, etc.).

Comment

Cardinality: 1..1, if RecordLinkage.legalBasis == 'Yes'; otherwise 0.. 0

Comment

Cardinality: 1..1, if RecordLinkage.legalBasis == 'True'; otherwise 0.. 0

Value Domain String
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated informedConsent 0 … 1
nfdhtfcov19-dataelement-126
Id nfdhtfcov19-dataelement-126 (2023‑11‑30 21:14:32) v3.3
Cardinality 0 … 1
Description

Informed consent for record linkage

Properties

RecordLinkage.informedConsent

RecordLinkage.informedConsent

Rationale

Description: Indication whether an informed consent that allows record linkage has been obtained.

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..1

Value Domain Boolean
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated responsibleInstitutions 0 … *
nfdhtfcov19-dataelement-127
Id nfdhtfcov19-dataelement-127 (2023‑11‑30 21:15:55) v3.3
Cardinality 0 … *
Description

Responsible authorities

Properties

RecordLinkage.responsibleInstitutions

RecordLinkage.responsibleInstitutions

Rationale

Description: Institutions and authorities that must agree to the record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..*

Value Domain String
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated additionalCosts 0 … 1
nfdhtfcov19-dataelement-128
Id nfdhtfcov19-dataelement-128 (2023‑11‑30 21:17:39) v3.3
Cardinality 0 … 1
Description

Additional costs for record linkage

Properties

RecordLinkage.additionalCosts

RecordLinkage.additionalCosts

Rationale

Description: Indication whether there are additional costs for record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..1

Value Domain Boolean
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated identifiers 0 … *
nfdhtfcov19-dataelement-129
Id nfdhtfcov19-dataelement-129 (2023‑11‑30 21:19:49) v3.3
Cardinality 0 … *
Description

Identifiers for record linkage

Properties

RecordLinkage.identifiers

RecordLinkage.identifiers

Rationale

Description: Identifiers that can be used for record linkage (e.g. names, date of birth, zip code, insurance number or control number as in cancer registries).

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..*

Value Domain String
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated furtherDetails 0 … 1
nfdhtfcov19-dataelement-130
Id nfdhtfcov19-dataelement-130 (2023‑11‑30 21:21:26) v3.3
Cardinality 0 … 1
Description

Further details important for conducting record linkage

Properties

RecordLinkage.furtherDetails

RecordLinkage.furtherDetails

Rationale

Description: Additional important details for conducting record linkage.

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..1

Value Domain String
target Used by 2 transactions, 0 templates, inherited 0 times
 
deprecated exampleResources 0 … *
nfdhtfcov19-dataelement-131
Id nfdhtfcov19-dataelement-131 (2023‑11‑30 21:22:53) v3.3
Cardinality 0 … *
Description

Record linkage example resources

Properties

RecordLinkage.exampleResources

RecordLinkage.exampleResources

Rationale

Description: DOIs of additional related resources specific to record linkage (e.g., publications).

Source

NFDI4Health UC 5.3 requirements

Comment

Cardinality: 0..*

Operationalization

Short input help: Please do not repeat those already entered in the section 'Related resources'.

Value Domain String
target Used by 2 transactions, 0 templates, inherited 0 times