| Name |
Details [‑] |
|
  RecordLinkage Conditional
nfdhtfcov19-dataelement-124
|
|
|
| Id |
nfdhtfcov19-dataelement-124 (2024‑12‑06 11:30:45)
|
| Cardinality |
Conditional
| Card/Conf |
Condition |
| 1 … 1 Mandatory |
1..1, if Design.dataSharingPlan.recordLinkage == "Yes" |
| 0 … 0 Not permitted |
0..0, if Design.dataSharingPlan.recordLinkage == "No" |
|
|
| Description |
Information about record linkage for the [RESOURCE]
|
| RecordLinkage |
RecordLinkage
|
|
| Relationship |
|
| Rationale |
Group of items providing information on record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 1..1, if Design.dataSharingPlan.recordLinkage == 'Yes'; otherwise 0.. 0
|
| Comment |
Cardinality: 1..1, if Design.dataSharingPlan.recordLinkage == 'True'; otherwise 0.. 0
|
 Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| legalBasis 0 … 1
nfdhtfcov19-dataelement-123
|
|
|
| Id |
nfdhtfcov19-dataelement-123 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … 1 |
| Description |
Legal regulation/permission for record linkage
|
| RecordLinkage.legalBasis |
RecordLinkage.legalBasis
|
|
| Relationship |
|
| Rationale |
Indication whether there are specific regulations/permissions for record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Additional information: Whether any specific legal regulations/permissions exist (e.g. for social data, for
cancer registry data, hospital data, etc.).
|
| Comment |
Cardinality: 0..1
|
| Value Domain |
Boolean |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| legalBasisDetails Conditional
nfdhtfcov19-dataelement-125
|
|
|
| Id |
nfdhtfcov19-dataelement-125 (2024‑12‑06 11:30:45)
|
| Cardinality |
Conditional
| Card/Conf |
Condition |
| 1 … 1 Mandatory |
1..1, if RecordLinkage.legalBasis == "Yes" |
| 0 … 0 Not permitted |
0..0, if RecordLinkage.legalBasis == "No" |
|
|
| Description |
Specific legal basis allowing record linkage
|
| RecordLinkage.legalBasisDetails |
RecordLinkage.legalBasisDetails
|
|
| Relationship |
|
| Rationale |
Information specifying which specific legal basis allows for record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Additional information: If existing, any specific legal regulations/permissions (e.g. for social data, for
cancer registry data, hospital data, etc.).
|
| Comment |
Cardinality: 1..1, if RecordLinkage.legalBasis == 'Yes'; otherwise 0.. 0
|
| Comment |
Cardinality: 1..1, if RecordLinkage.legalBasis == 'True'; otherwise 0.. 0
|
| Value Domain |
String |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| informedConsent 0 … 1
nfdhtfcov19-dataelement-126
|
|
|
| Id |
nfdhtfcov19-dataelement-126 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … 1 |
| Description |
Informed consent for record linkage obtained?
|
| RecordLinkage.informedConsent |
RecordLinkage.informedConsent
|
|
| Relationship |
|
| Rationale |
Indication whether an informed consent that allows record linkage has been obtained.
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..1
|
| Value Domain |
Boolean |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| responsibleInstitutions 0 … *
nfdhtfcov19-dataelement-127
|
|
|
| Id |
nfdhtfcov19-dataelement-127 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … * |
| Description |
Responsible authorities
|
| RecordLinkage.responsibleInstitutions |
RecordLinkage.responsibleInstitutions
|
|
| Relationship |
|
| Rationale |
Institutions and authorities that must agree to the record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..*
|
| Value Domain |
String |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| additionalCosts 0 … 1
nfdhtfcov19-dataelement-128
|
|
|
| Id |
nfdhtfcov19-dataelement-128 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … 1 |
| Description |
Additional costs for record linkage
|
| RecordLinkage.additionalCosts |
RecordLinkage.additionalCosts
|
|
| Relationship |
|
| Rationale |
Indication whether there are additional costs for record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..1
|
| Value Domain |
Boolean |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| identifiers 0 … *
nfdhtfcov19-dataelement-129
|
|
|
| Id |
nfdhtfcov19-dataelement-129 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … * |
| Description |
Identifiers for record linkage
|
| RecordLinkage.identifiers |
RecordLinkage.identifiers
|
|
| Relationship |
|
| Rationale |
Identifiers that can be used for record linkage (e.g. names, date of birth, zip code,
insurance number or control number as in cancer registries).
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..*
|
| Value Domain |
String |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| furtherDetails 0 … 1
nfdhtfcov19-dataelement-130
|
|
|
| Id |
nfdhtfcov19-dataelement-130 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … 1 |
| Description |
Further details important for conducting record linkage
|
| RecordLinkage.furtherDetails |
RecordLinkage.furtherDetails
|
|
| Relationship |
|
| Rationale |
Additional important details for conducting record linkage.
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..1
|
| Value Domain |
String |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
| exampleResources 0 … *
nfdhtfcov19-dataelement-131
|
|
|
| Id |
nfdhtfcov19-dataelement-131 (2024‑12‑06 11:30:45)
|
| Cardinality |
0 … * |
| Description |
Record linkage example resources
|
| RecordLinkage.exampleResources |
RecordLinkage.exampleResources
|
|
| Relationship |
|
| Rationale |
DOIs of additional related resources specific to record linkage (e.g., publications).
|
| Source |
NFDI4Health
|
| Comment |
Cardinality: 0..*
|
| Operationalization |
Please do not repeat those already entered in the section 'Related resources'.
|
| Value Domain |
String |
| Used by
|
one transaction, 0 templates, inherited 0 times |
| |
|
|
|
Transaction NFDI4Health Resource 2.16.840.1.113883.3.1937.777.64.4.27