Back To Index << Back To Datasets

# Data Set Module Chronic Diseases 2.16.840.1.113883.3.1937.777.64.1.4

Name | Id
--- | ---
Module Chronic Diseases | 2.16.840.1.113883.3.1937.777.64.1.4
Version / effective date | Expiration date
2023‑09‑11 19:06:50 |
Description
NFDI4Health LogicalModel Epidemiology of Chronic Diseases Metadataschema (Use Case 5.2) V3
Name | Details [‑] |
--- | --- | ---
ChronicDiseasesEpidemiology nfdhtfcov19-dataelement-117 | link
Id | nfdhtfcov19-dataelement-117 (2023‑09‑29 10:19:04)
Synonym | chronic_diseases_epidemiology
Description | Chronic disease data collection
### Properties
No 3_0 | CD1
Rationale | Description: Group of items providing information on chronic disease data collection.
Source | NFDI4Health UC 5.2 requirements
Comment | Cardinality: 1..*, if chronic_diseases == "Yes" AND resource_type == ("Study protocol" OR "Protocol amendment" OR "Informed consent form" OR "Patient information sheet" OR "Manual of operations (SOPs)" OR "Statistical analysis plan" OR "Data management plan" OR "Case report form" OR "Interview scheme and themes" OR "Observation guide" OR "Discussion guide" OR "Participant tasks" OR "Other study document" OR "Other"); otherwise 0.. 0
Comment | Display information? (Data capturing): yes Display information? (Data visualization): yes
commonChronicDiseaseName nfdhtfcov19-dataelement-102 |
Id | nfdhtfcov19-dataelement-102 (2023‑09‑11 19:06:50)
Synonym | common_chronic_disease_name
Description | On which of the following common chronic diseases were data collected?
### Properties
No 3_0 | CD1.1
Rationale | Description: Common chronic diseases on which data were collected in the study. Additional information: The values originate from the following sources: 1) 10 types of cancer with the highest incidence in Germany, by gender, based on 2017/2018 German cancer registry data (RKI, Zentrum für Krebsregisterdaten, https://www.krebsdaten.de/); 2) 10 cardiovascular diseases with highest mortality in Germany in 2020 (www.destatis.de). All values follow the classifiction system ICD-11 (WHO's International Statistical Classification of Diseases and Related Health Problems, 11th Revision (ICD-11), https://icd.who.int/en).
Source | NFDI4Health UC 5.2 requirements ICD-11 [ https://icd.who.int/browse11/l-m/en] Zentrum für Krebsregisterdaten [ https://www.krebsdaten.de/] Statistisches Bundesamt [ https://www.destatis.de/]
Comment | Cardinality: 1..1
Comment | Display information? (Data capturing): yes Display information? (Data visualization): yes
Operationalization | Short input help: Select one value from the list.
Value Domain | Code
Choice list |
Concept List
Concept | Description | Assigned references
Non-hodgkin lymphoma (mature B-cell neoplasms: 2A80-2A86, 2A8Z; mature T-cell or NK-cell neoplasms: 2A90, 2B00-2B03, 2B0Y, 2B0Z, 2B2Y, 2B2Z) |  | code "118601006" (Non-Hodgkin's lymphoma (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of lip, oral cavity or pharynx (2B60-69, 2B6A-Z) |  | code "271323007" (Malignant neoplasm of lip, oral cavity and/or pharynx (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of stomach (2B72) |  | code "372014001" (Primary malignant neoplasm of stomach (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of large intestine (2B90-2B93, 2B9Y) |  | code "93854002" (Primary malignant neoplasm of large intestine (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of pancreas (2C10) |  | code "372003004" (Primary malignant neoplasm of pancreas (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of trachea, bronchus and lung (2C24, 2C25) |  | code "93986008" (Primary malignant neoplasm of respiratory tract (disorder)) from code system "SNOMED Clinical Terms"
Malignant melanoma of skin (2C30) |  | code "93655004" (Malignant melanoma of skin (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of breast (2C60-2C65, 2C6Y, 2C6Z) |  | code "254837009" (Malignant neoplasm of breast (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of corpus uteri, cervix uteri, and uterus, part not specified (2C76-78) |  | code "371973000" (Malignant neoplasm of uterus (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasm of ovary (2C73) |  | code "93934004" (Primary malignant neoplasm of ovary (disorder)) from code system "SNOMED Clinical Terms"
Malignant neoplasms of prostate (2C82) |  |
Malignant neoplasms of kidney (2C90) |  |
Malignant neoplasms of bladder (2C94) |  |
Type 2 Diabetes mellitus (5A11-14) |  |
Disorders of lipoprotein metabolism or certain specified lipidaemias (5C80, 5C81, 5C8Y, 5C8Z) |  |
Hypertensive diseases (BA00-BA04) |  |
Ischaemic heart diseases (BA40-43, BA50-52, BA60) |  |
Heart valve diseases (BB60-65, BB70-74, BB80-84, BB90-93, BC00-02) |  |
Cardiac arrhythmia (BC60-65, BC70-71, BC80-81, BC90-91, MC82) |  |
Heart failure (BD10-14) |  |
Cerebrovascular diseases (8B00-03, 8B0Z, 8B10-11, 8B1Y, 8B1Z, 8B2Z, 8B20-26, BD55, BD56) |  |
Diseases of the circulatory system falling into multiple categories |  |
Data not collected for any of the above-listed diseases |  |
Value Set required NFDI4Health_VS_MDS_CD_CommonChronicDiseaseName_SNOMEDCT (version 2023‑10‑10 11:18:06)
dataCollected nfdhtfcov19-dataelement-118 |
Id | nfdhtfcov19-dataelement-118 (2023‑09‑29 10:28:52)
Synonym | data_collected
Description | Type of data collected
### Properties
No 3_0 | CD1.2
Rationale | Description: Type of data collected.
Source | NFDI4Health UC 5.2 requirements
Comment | Cardinality: 1..1
Comment | Display information? (Data capturing): yes Display information? (Data visualization): yes
Operationalization | Short input help: Select one value from the list.
Value Domain | Code
Choice list |
Concept List
Concept | Description | Assigned references
Prevalent | Persons in a population who have a particular disease or attribute at a specified point in time or over a specified period of time [CDC.gov (https://www.cdc.gov/csels/dsepd/ss1978/lesson3/section2.html)]. | code "C0033105" (Statistical Prevalence) from code system "Unified Medical Language System"
Incident | Occurrence of new cases of disease or injury in a population over a specified period of time [CDC.gov (https://www.cdc.gov/csels/dsepd/ss1978/lesson3/section2.html)]. | code "C0021149" (Incidence) from code system "Unified Medical Language System"
Value Set required NFDI4Health_VS_MDS_CD_DataCollected_UMLS (version 2023‑10‑10 10:56:44)
informationSources nfdhtfcov19-dataelement-119 |
Id | nfdhtfcov19-dataelement-119 (2023‑09‑29 10:31:15)
Synonym | information_sources
Description | From which source(s) are the data generated/extracted?
### Properties
No 3_0 | CD1.3
Rationale | Description: Source(s) from which information is generated/extracted. Additional information: Treat prevalent and incident diseases separately (selected values should be specific for prevalent diseases and then separately incident diseases).
Source | NFDI4Health UC 5.2 requirements
Comment | Cardinality: 1..*
Comment | Display information? (Data capturing): yes Display information? (Data visualization): yes
Operationalization | Short input help: Select all that apply.
Value Domain | Code
Choice list |
Concept List
Concept | Description | Assigned references
Self-report (questionnaires or interviews), cases verified | A method of data collection which involves asking a participant, for example, through questionnaires or interviews. The collected information is then verified by asking the treating physician, through administrative databases (e.g., health insurance data), or clinical examinations [NFDI4Health]. | code "116" (Self-report (questionnaires or interviews), cases verified) from code system "NFDI4Health_CS_MDS_Remaining_Concepts"
Self-report (questionnaires or interviews), cases not verified | A method of data collection which involves asking a participant, for example, through questionnaires or interviews. The collected information is not verified by any external information or clinical examinations [NFDI4Health]. | code "117" (Self-report (questionnaires or interviews), cases not verified) from code system "NFDI4Health_CS_MDS_Remaining_Concepts"
Administrative databases | Information about administrative data [Maelstrom (doi: 10.1371/journal.pone.0200926)]. | code "C0242356" (Databases) from code system "Unified Medical Language System"
Biosamples | A sample of material, such as urine, blood, tissue, cells, DNA, RNA, or protein, from the study subject [NCI Dictionary of Cancer Terms (https://www.cancer.gov/publications/dictionaries/cancer-terms)]. | code "C1706958" (Biosample) from code system "Unified Medical Language System"
Physical measures (e.g., clinical examination) | Information about physical functioning. Information in this domain is generally measured [Maelstrom (doi: 10.1371/journal.pone.0200926)]. | code "C0031809" (Physical Examination) from code system "Unified Medical Language System"
Other | Sources of data other than self-report, administrative databases, biosamples and physical measures [NFDI4Health]. | code "C0205394" (Other (Qualitative Concept)) from code system "Unified Medical Language System"
Value Set required NFDI4Health_VS_MDS_CD_Information_Sources_UMLS_Local (version 2023‑10‑10 12:32:23)